Health

Beacon - provides up to 90 minutes free advice and a free toolkit on continuing health care (CHC), including on CHC assessments and appeals. CHC is relevant for adults aged 18 or over who have complex health needs.

NHS continuing healthcare explainer video (transcript and description available): https://www.england.nhs.uk/long-read/nhs-continuing-healthcare-explainer-video-transcript/

Contact - has a comprehensive directory of medical conditions and learning disabilities, with details of organisations which can provide support for each type. You can also download or request a hard copy of Contact’s free “Helpful guide for families with disabled children”. It also has a dedicated page on support when a child does not have a diagnosis.

ERIC - The Children’s Bowel and Bladder Charity: https://eric.org.uk/

ERIC provides a free helpline, information, advice and resources on children’s continence issues, including best practice guidance for education settings.

NHS Right to Choose - In many cases, NHS patients in England have the legal right to choose where to have their NHS treatment. This is known as “Right to Choose” and can often include who carries out assessments for conditions such as autism and/or ADHD. If you or your child are facing a long wait for assessment and wish to find out more about Right to Choose, further information is available on the NHS's website and from the charities National Autistic Society and ADHD UK.

SHINE - (Spina bifida. Hydrocephalus. Information. Networking. Equality): https://www.shinecharity.org.uk/

SHINE is a charity which provides a range of free services for children and adults living with spina bifida and/or hydrocephalus, and their parents. Services include health support, legal support and education support.

Stroke Association - Childhood Stroke Support Service: https://www.stroke.org.uk/childhood-stroke

The Stroke Association offers a Childhood Stroke Support Service, which has information and advice for parents and carers of children affected by childhood stroke. Services include practical information and a support service.

Latest

Days out and discos: when disabled children miss out

Around this time of year, we often hear from families whose children have been excluded from end of year activities due to behaviour, but is this lawful?
New report: Breaking barriers

We have published a new report highlighting persistent inequalities in how children and young people from under-served communities access special educational needs and disabilities (SEND) provision, and how their families access the legal advice they may need to secure that support.
Annual reviews during Tribunal contents appeals: Can LAs still issue amended EHC plans?

With SEND Tribunal waits now reaching 18 months, many families face annual reviews during an ongoing appeal. Here's what families need to know.
SEND Tribunal hints and tips (2): 7 October

This training is suitable for parents and carers currently going through an appeal against the contents of an EHC plan or an appeal against the school named in a plan

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